Vision loss is one part of Bardet-Biedl, the rare syndrome that Lucy has. You can read more about Lucy by clicking on the "I love Lucy" button in the right sidebar. My sister Shawni and her family have had quite a ride with this wonderful little girl - and the ride just keeps going.
Shawni shared this little story that made me cry:
"Every so often I get smacked in the face with the reality that, like it or not, Lucy's vision is deteriorating. Sometimes it just hits me like a ton of bricks.
"The latest realization was when she told Dave [Shawni's husband] a while ago in her little sing-songy voice: 'When it's the daytime my eyes are blue, but when it's night-time they turn black.'
"My heart aches to think that some day she may not be able to see the colors she makes her beautiful art with.
"About all we can do is to try to help raise money to help fight blindness.
"And man alive do we ever want to fight it around here."
You can help Lucy and the 1000's of other people facing vision loss. Across the country this spring, there are Vision Walks going on to support the Foundation Fighting Blindness. You can participate in a Vision Walk in person (there are 51 walks all across the country going on this spring - you can find out if there's one near you HERE) or by donating whatever amount fits your budget to Shawni's Vision Walk team (even a few dollars helps!). Shawni's Vision Walk team still needs quite a bit of help to reach their fundraising goal. And the Foundation Fighting Blindness needs a LOT of help to fund the vital research they are doing that just might save Lucy's vision. I sure want to see some answers come along before it's too late for sweet Lucy.
Here's the link to Shawni's team page where you can make a donation:
GIVEAWAYAnd you know what? If you make a donation (using that link above - it takes about 2 minutes) or sign up to do a Vision Walk in your community, then come back and make a comment on this blog post to let me know what you did, you'll be entered in a giveaway for a FREE ONE-DAY REGISTRATION to one of our upcoming Power of Moms Retreats (worth about $150).
To enter, do two things in your comment:
1. State what you did to help the Foundation Fighting Blindness (donated to Shawni's team or signed up to be part of a Vision Walk yourself - no need to state the amount of your donation!)
2. Specify which of the three upcoming Retreats you'd like to attend.
Here are details on the upcoming Retreats:
I'll announce the winner of the Free Retreat Registration in a blog post at 5:00pm this Friday, March 30th!